My sister Anna was born with a very rare genetic disorder called Alagille Syndrome (ALGS). There are only about 8,000 cases of ALGS in the United States and only a couple of hospitals that treat it. For the past four years, Anna has … Continue reading
My sister Anna was born with a very rare genetic disorder called Alagille Syndrome (ALGS). There are only about 8,000 cases of ALGS in the United States and only a couple of hospitals that treat it. For the past two … Continue reading
In honor of Rare Disease Day, I challenge you to join us in celebrating rare people by performing acts of kindness in your community from February 22nd to 29th. Together we can increase awareness for ALL rare diseases. Together we can make sure the voices of ALL rare people are heard.
Continue readingMy sister Anna was born with a very rare genetic disorder called Alagille Syndrome (ALGS). There are only about 8,000 cases of ALGS in the United States and only a couple of hospitals who treat it. Throughout her life Anna … Continue reading