Guest post: #RareActsOfKindness Week to celebrate Rare Disease Day

In honor of Rare Disease Day, I challenge you to join us in celebrating rare people by performing acts of kindness in your community from February 22nd to 29th. Together we can increase awareness for ALL rare diseases. Together we can make sure the voices of ALL rare people are heard.

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Guest post: Rare Acts of Kindness to celebrate Rare Disease Day

My sister Anna was born with a very rare genetic disorder called Alagille Syndrome (ALGS). There are only about 8,000 cases of ALGS in the United States and only a couple of hospitals who treat it. Throughout her life Anna … Continue reading